I have stopped life-saving medicine that says that man is tired of fighting for NHS care

Tim plow can point to many achievements during its 56 years. He ran his own apprentice business and kept Ukrainian refugees for two years. He is even in the Guinness Book of Records: at a height of about 7 feet, he and his brother were the highest twins in Britain for about two decades.

But this is a life Tim has decided to end. His quality of life, he says, “very, very little”. Tim has a medical condition – unrelated to its height – which weakens her muscles, and has declined rapidly in the last two years.

Tim says that this is a fight to get health and care support, which inspires him to make desperate decisions. They feel that health has been left by professionals, transferred from one waiting list to another, not provided the right equipment to help them and made of bed for about seven months.

In February, he stopped taking the drug that prevents his kidneys from failing. They are now giving up defeat and he knows that he does not have months, if not the week, to live.

“I don’t think things are going to be better than this,” he tells BBC News. “I just feel [ending my life] Lying in bed 24 hours a day would have a better option. ,

Tim’s neurological condition is rare, however, has faced many difficulties, which he has felt familiar to many people.

In the last two years, BBC News has been approached by families of more than 250 people with serious disabled or diseases about their struggles to reach health and care services.

Many described the effects of very long wait for assessment, appointments and important equipment that can help them encounter at home.

He also highlighted the frustrations of signing the right services, trying to get someone to pass from the department to the department, and felt that they only heard when they reached a crisis.

Some people also had long arguments on whether their care should be paid by NHS or local councils.

Tim, who lives on his own at the warster, first went to his GP in 2022 as he started stumbling while walking.

He was sent to a rheumatologist. He waited for a year for appointment, only it was reported that it was wrong expertise.

He then waited for several months to see a local neurologist, then several more months to see a more senior neurologist in Birmingham. In two years this was taken, he lost his ability to walk and had to use wheelchairs.

Tim was eventually diagnosed with a rare neurological position, hereditary spastic paraplia (HSP), which causes cramps and muscle weakness. Pain, fatigue and depression are also common symptoms.

This is incurable, but according to the NHS website, it usually does not affect life expectancy. There are more than 80 variants, but Tim says he is still told who they have. Physiotherapy and drugs are usually used to manage symptoms, but Tim felt that he was expected to “move forward with it” after the diagnosis was made.

In 2024, he spent two months in the hospital. Whereas, regular physio helped them achieve some dynamics, but no support was released after giving them discharge. His case was sent back to the Worster and its neurology therapy team.

Tim received a letter on 10 July 2024, welcomed him and said he was on the waiting list for an assessment. Despite chasing for an appointment, he says he did not hear anything. A year later, on 15 July 2025, he received another similar letter. This is welcome, you are in a waiting list. This time it included a notice sheet.

When Tim has sought help from his GP, he says that he is often told that his case is very expert and he should call 111.

Tim’s height has added their difficulties. It is impossible to get the basics for someone who is 6ft 10in (2.08m), seems impossible.

He used all his savings to customize his home and buy equipment so that he could stay down, but spent two years in the bed of a standard hospital provided by NHS, which was too young for him. He describes it like “hidden uncomfortable” and “torture”. Three months ago, he was finally given a new, tall bed, but this causes him to sit in a position that says that he takes a large knee phenomenon as a meal. Now they have mostly food-up-pays.

A wave has also been a big problem to raise him and out of bed. The first two tried by NHS were very small to safely use.

At the end of April, there was a discussion about the hoisting of a roof. They are still waiting in two and a half months. This means that Tim has not been able to leave his bed from February this year.

He is waiting for a wheelchair to be fit for a wheelchair that can deal with his height, but it cannot happen until it is a wave to get him out of bed.

Says Tim, “Life is lying in a bed on day-to-day basis, feeling very uncomfortable, fighting to get support.” “Above a certain height, you do not exist.

He says, “The way I was living. Health and Care System, he said,” not worked. No one is involved in this. There is no thinking. “

Officials responsible for Tim’s care say they cannot comment on personal matters, but they regularly review how care is given to meet each individual’s “unique needs”.

Hearfordshire and Warsester Serire Health and Care NHS Trust says “Where equipment, home optimization or community nursing support is required, our goal is [before discharge] To ensure a safe, well -backed infection from hospital to home ”.

Tim has a separate, hereditary kidney condition, called polycystic kidney disease. His twin Andy, his father Allen and Sister Suu were also born with condition.

Twenty years ago, Tim had a kidney transplant from his elder brother Richard. Tim’s twice daily pills prevent the kidney from failing.

Without him, Tim knows that he has months, if not a week, left to live. He feels that he has very little option to prevent taking tablets.

Suu, a social worker of a retired children, says that she has been destroyed by Tim’s decision.

She says, “She does not need to lie to die here. He is to give a lot.” “And I think he is completely left.”

She spends almost every day to take care of her and has made an endless call to try to get her support that she needs.

In February, Suu made immediate calls for Tim’s GP, local mental health services and adult social services as he was very low. Again, she says she was passed to post from the column, and it was a fight to seek help. She says “Nobody was thinking”.

Six months after stopping the bullets, Tim says he does not regret it.

But pressurizing what the difference would be, he says: “If I can be hoisted [of bed] And sat for dinner, if I can only get out of the garden to bring changes in the scenes, it can help a lot. ,

A friend suggested that the lawsuit should contact the local Dharamshala. It has now become a central point of advice, support and information which Tim was in dire need of two years ago. This manages her pain medicine and has helped her to get NHS funding for four care trips a day. It also arranged for a psychologist to investigate that he has the ability to decide the end of his life.

He says that he has been asked this question many times by doctors, but no one ever asked what he can be done to reconsider.

The tragic irony is that they have been taken to take care of life to join more that it is not lost in the lawsuit, but she says it is still not enough that she really provides the level of support of the need.

“I am completely heartbroken by the situation,” she says. “I think I have gone beyond anger. I can’t just believe that the UK will allow it to happen.

Tim’s local NHS Trust says “We work in close partnership with other health and care organizations, to ensure that the experience of the patients has joined care. Multiple teams (MDT) bring professionals of various specialties together who regularly review the needs of each patient”.

The NHS Hearfordshire and the Warsesterushare Integrated Care Board (ICB) say that it regularly reviews how “how to take care to ensure that it meets the needs of patients and is both safe and effective”. It also states that “there is a” clear system “to respond to any concern, learning from events and continuously improves care throughout the system.

The ICB states that its purpose is to “ensure that everyone is seen, heard, and supported – no matter whether their personal circumstances are”.

The Department of Health and Social Care (DHSC) says that “it is unacceptable that Mr. Hul has not received the care he deserves” and is working to ensure that everyone has access to high quality care.

DHSC says its 10 -year health plan will “exclude healthcare from hospitals in the community to ensure that patients and their families get personal care at the right place at the right time”. It also states that it is investing in an additional £ 100M in Dharamshalas and Life Care.

Tim is now very weak, and on very strong pain reliever. He says that when he has left, he wants to “be as comfortable and supported as possible,” saying “there is a lot of fear of unknown with the decisions made by me”.

If you are suffering from crisis or despair, the UK is available and the details of support and support are available in the UK. BBC Action Line,