Community Correspondent, BBC Wells News
A mummy whose severe pregnancy disease was so bad, said that she had to end one, she has asked for better care of women like her.
Monmothshire’s entire spooner begs medical professionals for Zonavia, an anti-skin drug available in England Hypermesis gravidaram (HG) but is not available regularly in Wales.
HG has been defined by NHS for prolonged nausea and vomiting that cannot stop until the child’s birth.
The Welsh government stated that Xonvea can be determined in extraordinary cases, where other treatments have failed, more than 750 prescriptions have been done since January.
As NHS WalesIt is believed that one of one to three of every 100 pregnant women gets HG, although some cases are unpounted.
Symptoms are severe nausea, vomiting, dehydration and weight loss and often require hospital treatment.
Sara, 32, said that her concerns about excessive vomiting in her first pregnancy were dismissed and it was only after giving birth and losing 3 kg (6LBS) that she realized that she was probably HG.
Mam-off-one thought that his information about this situation would help her second pregnancy earlier this year “but then it was just a car accident”.
She regularly recalls to wake up to get sick at 4 or 5 o’clock, unable to eat or drink and be unable to work.
“You can’t keep the water down and then you are tired because you do not eat for days and your headache and you are losing weight.”
Optometrist and part-time photographer said, “When the disease deteriorated, she wanted to try Axonavia, which was the only anti-immoral license to use in pregnancy to treat nausea and vomiting in the UK.
It is recommended by the Royal College of Obstatocians and gynecologists as an effective first row treatment, such as cyclizian, procloreparjene and oven with options such as which are regularly determined by doctors.
The cost of a box of 20 tablets is £ 28.50 – significantly higher than other options.
Xonvea is not available regularly in Wales or Scotland – it is available in parts of England, although last month the Prime Minister Kir Stmper promised Postcode Lottery to face some patients.
Sara was prescribed the drug in an appointment in Wales and found that it is more effective than other drugs, but it was only for a fortnight and was difficult to catch.
He said, “My husband had to run a 100 mile round-trip, and I am getting sick, so they have to work to deliver me there.”
Once, her husband had to call the ambulance after coming home to find vomiting on the floor, unable to move due to pain.
Nine weeks pregnant and ill with a serious eye infection, a doctor of a hospital reported that her body was not fighting.
“She said the worst situation, you are only seven months left and I felt ‘I am going to die, I can’t do it for seven and months”, she said.
The couple decided to end their pregnancy and now Sara has presented one. Petition To call Senedd for widespread access to Xonvea in Wales.
She described her experience as “incredibly despair” as she lives on the Wales-England border.
“To think, if I lived half a mile below the road, the result of pregnancy could be different, it is just unacceptable.”
Supporting pregnancy disease, Chief Executive Charlotte Hoven said the situation was “beyond faith”.
Donation, which provides consultation, training and advocacy, said that there is a need to be fair.
“With Wales it is effectively a broad ‘The computer says that no, you are not able to reach this medicine”, “He said.
“Yes, you may find a doctor ready to determine it, but it should not travel here.”
He said that it was important to note that there were different results for individuals of various combinations of drugs, but women should have all the options available, even if without caring about the cost of Xonvea.
“What is the cost of an ambulance to go to the hospital because you are not given all the treatment options you have and once you do so that it is a very quick assessment to be able to see a false economy”.
The All-Wales Medicine Strategy Group (AWMSG) advises the government about the use, management and determination of drugs.
It is composed of NHS advisors, GPS, nurses, pharmacists, health economists, representatives of the pharmaceutical industry and consider both clinical evidence and cost effectiveness.
A spokesperson said the latter’s data was “insufficient” from the company when it evaluated the Xonvea in 2019, although it recently met the manufacturer again and understood that it was “actively searching for what options were available”.
It states that it is expected that the company may re -connect at the end of this year.
Manufacturer EXELTIS UK stated that it is in touch with AWMSG and was working with health boards in Wales “to support access to treatment”.
Welsh government said that GPS regularly prescribed in each health board sector when other treatments have failed and the 2019 evaluation of AWMSG has been the most current formal assessment of the drug in Wales.
“It did not recommend regular use due to insufficient cost-effectiveness data” said this.
- If you are influenced by any issue raised in this story, you can find details of organizations that can help BBC Action Line,